I am a widow.
The word doesn’t want to come out of my mouth, but it’s a word my brain keeps playing with.
I keep thinking back over the last 3 weeks. I sat in the hospital next to his bed for more hours than I can count.
Before he was intubated, I would lay next to him and beg him to just breathe.
Just keep on breathing…
His lungs were destroyed so fast. I am what his doctors call an “excellent patient advocate.” That means I asked questions like my life depended on it… like his life depended on it…
The doctors were very kind and patient and were good at showing me the progressive scans and X-rays of his lungs. I’m no doctor, but even I could see that what was happening was happening very, very fast.
One of the chemotherapy drugs he was given - a lower dose than usual - caused a devastating toxic reaction in his lungs that happens so rarely it’s never been studied. When it does happen, there is only a very small percentage that doesn’t respond to the steroids…
From when the disease began until death was about 10 days.
Ten of the longest, shortest days of my life.
And there was nothing anyone could do.
We said goodbye, just in case. He made the decision to be intubated. I was both thankful that he made that choice so I didn’t have to, and devastated that he chose to. We all knew it was the last chance he had to live, but we also new that chance was only a whisper.
We laid in the hospital bed together, whispering our last words.
We have a little thing we’ve been saying to each other for almost 15 years. He says the first line and then I finish it with my part. I can’t tell you what we say because it’s our secret. But we both knew we were saying it for the last time.
As the doctors and nurses bustled around the room preparing for the intubation, instrumental hymns played from Pandora. I watched the doctor unpack the emergency kits and give orders to the nurse.
My husband and I gazed into each other’s eyes for the last time, and I was asked to sit in a chair away from the bed. I wanted to scream at everyone to leave him alone and to get out. I wanted to scream at my husband to not give up. To not leave me. I wanted to run back over and so he could hold me one last time.
The doctor came over and we had to discuss if they would resuscitate him if it didn’t go well. The decision was made that they would not.
The roughly 48-hours he was intubated there were moments when we could communicate to him. He would nod or shake his head, or give a thumbs up. He tried to write to me a few times, but the only word I was ever able to read from him was, “HURT.”
His lungs continued to deteriorate so quickly. First a hole in one lung, then one in the other. The medical team worked around the clock to try to keep him stable. Friday morning it was apparent that they no longer could. He was likely already suffering brain damage from the low oxygen levels. Because of the lack of oxygen, his heart was also beginning to fail.
There was no more chance. No more hope.
The children arrived around 10 am. Amelia sobbed like a child should never, ever cry when I told them that Papa was going to die. I explained what was going to happen. I reminded them what we believe about the Christian hope we have after death. I wept with them.
We all went into the room and surrounded him with all the love in our hearts. Both our families were there, and my best friend.
The tube came out and he continued to breathe on his own for about an hour. And then, he didn’t.
He slipped quietly into the deep sleep of death as I clung to his side.
My heart. Oh my heart.
I never imagined I could feel so dead inside.
Yet, despite all the sadness and pain, it doesn’t feel dark to me. Instead of what I was expecting - a dark shadow to consume me - I instead find myself wrapped in love and light.
Maybe the darkness is still to come, but for now, I am comforted knowing that my husband can rest until Jesus calls for him to wake up and go to heaven. I am comforted knowing how much love is being poured out for our family. I am comforted by looking into my children’s faces and seeing him live on. I am comforted with the knowledge that he ran his race well, didn’t stop until the end and finished with grace and love.
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The word doesn’t want to come out of my mouth, but it’s a word my brain keeps playing with.
I keep thinking back over the last 3 weeks. I sat in the hospital next to his bed for more hours than I can count.
Before he was intubated, I would lay next to him and beg him to just breathe.
Just keep on breathing…
His lungs were destroyed so fast. I am what his doctors call an “excellent patient advocate.” That means I asked questions like my life depended on it… like his life depended on it…
The doctors were very kind and patient and were good at showing me the progressive scans and X-rays of his lungs. I’m no doctor, but even I could see that what was happening was happening very, very fast.
One of the chemotherapy drugs he was given - a lower dose than usual - caused a devastating toxic reaction in his lungs that happens so rarely it’s never been studied. When it does happen, there is only a very small percentage that doesn’t respond to the steroids…
From when the disease began until death was about 10 days.
Ten of the longest, shortest days of my life.
And there was nothing anyone could do.
We said goodbye, just in case. He made the decision to be intubated. I was both thankful that he made that choice so I didn’t have to, and devastated that he chose to. We all knew it was the last chance he had to live, but we also new that chance was only a whisper.
We laid in the hospital bed together, whispering our last words.
We have a little thing we’ve been saying to each other for almost 15 years. He says the first line and then I finish it with my part. I can’t tell you what we say because it’s our secret. But we both knew we were saying it for the last time.
As the doctors and nurses bustled around the room preparing for the intubation, instrumental hymns played from Pandora. I watched the doctor unpack the emergency kits and give orders to the nurse.
My husband and I gazed into each other’s eyes for the last time, and I was asked to sit in a chair away from the bed. I wanted to scream at everyone to leave him alone and to get out. I wanted to scream at my husband to not give up. To not leave me. I wanted to run back over and so he could hold me one last time.
The doctor came over and we had to discuss if they would resuscitate him if it didn’t go well. The decision was made that they would not.
The roughly 48-hours he was intubated there were moments when we could communicate to him. He would nod or shake his head, or give a thumbs up. He tried to write to me a few times, but the only word I was ever able to read from him was, “HURT.”
His lungs continued to deteriorate so quickly. First a hole in one lung, then one in the other. The medical team worked around the clock to try to keep him stable. Friday morning it was apparent that they no longer could. He was likely already suffering brain damage from the low oxygen levels. Because of the lack of oxygen, his heart was also beginning to fail.
There was no more chance. No more hope.
The children arrived around 10 am. Amelia sobbed like a child should never, ever cry when I told them that Papa was going to die. I explained what was going to happen. I reminded them what we believe about the Christian hope we have after death. I wept with them.
We all went into the room and surrounded him with all the love in our hearts. Both our families were there, and my best friend.
The tube came out and he continued to breathe on his own for about an hour. And then, he didn’t.
He slipped quietly into the deep sleep of death as I clung to his side.
My heart. Oh my heart.
I never imagined I could feel so dead inside.
Yet, despite all the sadness and pain, it doesn’t feel dark to me. Instead of what I was expecting - a dark shadow to consume me - I instead find myself wrapped in love and light.
Maybe the darkness is still to come, but for now, I am comforted knowing that my husband can rest until Jesus calls for him to wake up and go to heaven. I am comforted knowing how much love is being poured out for our family. I am comforted by looking into my children’s faces and seeing him live on. I am comforted with the knowledge that he ran his race well, didn’t stop until the end and finished with grace and love.